And the waiting continues..
Saw my favourite GP today. You know why she is my favourite? She actually turns away from her PC, moves closer to you and listens to what you want to say & asks you questions. Other GPs at the practice have a horrible habit of continually looking at their computer screen and click away as you try to talk to them with little eye contact. Even if the appointment outcome is the same, I don't know about you but I feel so much better if I feel I have been listened to and not just felt like an inconvenience to be hurried out of the surgery.
She has prescribed me a 10mg twice daily dose of the slow release version of Nifedipine to see if that helps more with my Raynaud's rather than the 5mg 3x daily immediate release version I had and which hasn't helped - they have to order it in so hopefully I can pick it up tomorrow (I live in the sticks and go to a country practice that has their own pharmacy on site) & she's going to chase up the Royal Free to find out when I am likely to get an appointment through and get back to me.
She wasn't keen to prescribe any antibiotics for the blister site on my leg so I'll just have to keep a close eye on it and make sure the red inflamed area doesn't get any larger. I'm thinking of drawing a circle around it so I can be sure and I do take photos on my phone so I can see how it is progressing as it's so easy to lose track of whether it's really healing or not!
I've decided to write the occasional blog post so I can document how the diagnostic process goes. My GP does think I have some form of Scleroderma but we'll just have to wait and see and I'm trying not to worry abou the wider implications until I know for sure what's going on.
Thanks for the comments on my other Blog post - the path to diagnosis is a bumpy ride and can be pretty scary so it's good to know there are others out there who understand. I avoid talking to anyone else about this as it just comes out as if you are wallowing in self pity about just having cold hands! And I certainly wouldn't want to bore them with all the other symptoms as I think their eyes would glaze over with incomprehension!