has anyone had any medication that helps with Raynauds and other symptoms of MCTD ?
I have been passed from neurology to ... - Scleroderma & Ray...
I have been passed from neurology to rheumatology and told I have MCTD but there is no treatment is this the case ?
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sylviagreenhalgh
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I have had MCTD for 35 years, since I was around14 years old. There is a lot of different treatments out there. I have been on predisone for 35 years. You should find you a dr. who will help you more. Theres a lot of good ones out there. I hope you can find one that will help you. God Bless you.
Hi, have had MCTD and Raynauds for over 20 years now, have been on predislone, 75 mg aspirin and hydroxychloroquine for the same length of time - hope this helps - look after yourself x
I am 45 & have had Raynauds since I was about 15. Several years ago they expanded the diagnosis to limited scleroderma. About two years ago I noted a change - specifically with my knees, joint pain & visible lumps of what felt like bone on my knee caps under the skin. At this time they started me on hydroxyquine & said it would 'help', but with what they never clarified! (& I clearly did not push) Having read the tablet information the only thing that stuck in my mind was that it MIGHT cause lifelong visual imparement! I have taken it as instructed for more than a year - can't say I've noted any difference (perhaphs I would if I stopped taking them - hard to tell while you are on them!) Could you tell me what they are supposed to be doing for you & if you find them useful.
Many thanks.
thansk for this what are the dosages for the predislone and the hydroxychloroquine ?
What is MCTD?
mixed connective tissue disease
While there is no cure there are drugs out there that they can give you which help ease the discomfort. Keep nagging. Ax
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